Our friends at the Cambridge Rare Disease Network are holding their 3rd annual International Rare Disease Summit. The Network was co-founded by one of our Leaders of Tomorrow, Dr Tim Guilliams. The CRDN International Summit 2016 was selected as a finalist for the Communiqué Awards for Excellence in Communications via a Live Event or Stand-Alone Activity.
Venue: Robinson College, Cambridge on 23rd October 2017
Costing: tiered pricing with early bird tickets and discount tickets for patients and patient groups, students and start-ups.
This event seeks to create a forum that brings together patient groups, healthcare, academics, researchers, biotech companies, and the pharmaceutical industry in a spirit of collaboration, innovation and passion to re-imagine and re-invent the Rare Disease patient journey. 2016 saw 220 delegates from across the rare disease community with excellent networking opportunities and a unique chance to collaborate with such a range of partners.
Theme: “Re-imagining the Patient Journey”
A morning of exploration of inspirational Rare Disease patient journeys where patients and patient carers have been partners in healthcare and treatment development. Journey through case-studies from early symptoms, dead-ends and steps forward to diagnosis, patient group formation, campaigning and research to pharma collaboration, clinical trials and drug development.
The afternoon will showcase pioneering work being undertaken in Cambridge and around the world to re-imagine and re-write the endings of Rare Disease Patient journeys including gene editing, drug re -purposing and pharma ‘adoption’ of rare diseases to empowering patient revolution, rare disease search engines and rare disease telemedicine nursing.
NEW FOR 2017
Patient groups have an opportunity to showcase posters in a Patient Journey gallery and all delegates will enjoy wide networking opportunities with exhibition stand holders from industry and patient organisations. For poster submissions guidelines see here http://camraredisease.org/index.php/crdn-summit-2017/patient-journey-poster-gallery/
Students4RareDiseases host a breakout session with a range of speakers providing an overview for foundation doctors, medics and healthcare professionals in early stage training etc. Hear about a medic’s Rare Disease patient journey, the utility of the diagnosis, red flags and the 100,000 Genome Project.
Breakout session by Norwegian company ‘No Isolation’ showcasing their AV1 avatar technology for encouraging participation for those at risk of isolation from chronic, lifelong conditions.
Followed by a drinks and canapé reception in the dining hall on site.
For the full programme and speakers go to http://camraredisease.org/index.php/crdn-summit-2017/